Me before my journey began.
June 2004
Sunday, 19 October 2008
Finally an update!
Sunday, 20 July 2008
Sick of the swelling!!!
It is over three months now since my last surgery and I am still experiencing swelling. The surgeon did tell me to expect swelling until at least August, but as the weeks progress, I hope for a faster loss of the swelling. My legs are slowly returning to a normal shape, but still have a way to go. Around my middle is what really annoys me. The swelling goes up and down. Some days I feel like I have a beach ball under my skin, and other days its hardly noticeable. I have tried to work out what causes more swelling, but haven't found anything conclusive.
I know that if I have a day in the office for work, rather than being out on the road visiting clients, I have more swelling at the end of the day. Exercise and resting seem to have varying affects on the swelling. I get very frustrated with the swelling and have days of feeling very down about the way I look. I still struggle with accepting the way I look is because of the swelling. Body image is such a huge thing. It is hard getting used to such a different body and discovering what is "normal" for me. I still don't know how my body is going to end up like.
I am exercising a minimum of 1 hour a day and trying to tone up underneath the swelling!!! I am able to run again and am really pleased to be running up to 5km again. I still feel every step in terms of where I have had surgery, but I can ignore it now!! I love the feeling after a run. It's great to make my body work hard!!!
Tuesday, 3 June 2008
Progressing well
Tuesday, 20 May 2008
Fitting into my skin!!
Today I have had a day where I have been confident with how I look. Also a day that I feel like my body and the swelling haven't let me down. Some days I get really frustrated with the swelling and feel really discouraged that all this pain and discomfort has been a waste of time. But today as I have said in the title, I feel I had a day of fitting into my skin!!! Funny thing to say, but it describes how it feels to have such a different body to what I am used to.
To mark this day, I took the above photos. I purposely didn't take my face, but the parts of my body that have given me a real boost today.
In regards to healing, it still continues to be a slow process. I am happy though that the infected spots are all healing quite quickly. I only have one small spot on my right leg now. The pain and stiffness in my legs is slowly going and I can have moments of not even feeling any discomfort in them. The end of the day is a different story, but that is to be expected. The swelling is taking the longest to heal, but I have been doing a bit of reading, and see that this length of time is quite normal. Changing position, whether while in bed or getting out of a chair or in and out of the car is what gives me the most trouble. But that is getting less now, and as long as I don't stay in the same position for too long, I am ok.
So, it is the time to keep positive, and hang onto the confidence I feel today. And then to remember to use these great feelings to pick me up the next time I am feeling down and unsure of the whole process.
Saturday, 10 May 2008
Six Weeks Post Surgery and Back to Work!!
Saturday, 3 May 2008
Recovery progress continues.............
Friday, 18 April 2008
Three weeks after surgery...........
Just to finish this note, I thought a pleasant photo of Thomas was needed!!! He makes me smile everyday!!!
Tuesday, 8 April 2008
Recovery Time Again!!
Sunday, 23 March 2008
Running faster!
I just wanted to record an achievement that I am a bit proud of!!
There is a track not far from my home that I run around. Before surgery last year, I could run it in about 7 - 8 minutes. About two weeks ago, I ran it in 4 minutes!!! I couldn't believe it. Then, a couple of days ago, I ran it in 3 minutes 48 seconds!!! I felt I like I was running faster than I used to, but that sort of improvement really surprised and thrilled me!!!
My goal was always to be fit again ready for the second surgery. With it being booked a lot sooner than first thought, I was worried I wasn't putting myself in the best possible position for a good recovery, but after taking note of this running achievement, I think I am fitter than what I was thinking!! I still have a constant feeling that I am wearing a belt that is a bit tight, but it doesn't bother me as much and some days I hardly notice it.
I am feeling positive again!
Saturday, 22 March 2008
Is that my shadow???
While I was out walking, a lady who was working in her garden asked me "is it all worth it?" Without hesitation I said "It sure is". I was thinking that not only is the exercise good for strengthening my heart, lungs, muscles and my general health and fitness, but it lifts my mood and confidence in myself. It is a great way to keep the mental health in good shape also! So how could it not be worth it!!!!
Sunday, 16 March 2008
Next Surgery Date Set!!!
Sunday, 2 March 2008
Back to the GP and the Surgeon!
I saw the surgeon on Friday afternoon, and in his typical fashion, wasn't too concerned about the hole but did acknowledge that 4 1/2 months was a long time to still have this trouble. He advised I stop packing the hole with gauze and he felt it would heal up ok. If it didn't heal very soon, or if it broke down again, he would have me in the hospital for a day procedure where he cut that section open, fixed whatever was causing the problem, and sew it all back up again. He said it could just be a dead fat cell that hadn't dissolved, or something like that!!!
But besides the hole, he was very pleased with how my skin had toned up where it should, and loosened where it should. He is now keen to complete the work. He didn't think it was important to wait until the hole heals or wait any extended time. Unfortunately he is booked when I have my annual leave planned in April, and as I don't have sick leave due now until October, I can't just book surgery until I sort out my leave from work. He is available in May, so after a preliminary discussion with my manager to determine if I could change my leave, I now have a few decisions to make!! The surgeon promises me that the second surgery will be no where near as difficult or major as the first. The tidy up he has to do on my stomach is very minimal recovery, my arms will be about a 10 day recover, but my legs will be the major thing to recover from.
I will receive his surgery quote in the mail this week, so once I have that, and have decided what I really want to do, and made sure I wasn't going to upset too many people by changing my leave, I will know what the near future holds. Of course I was really looking forward to having 3 weeks holiday and Andrew and I were planning on going away. I have been so busy at work and have had some very stressful situations to deal with, so time off that wasn't spent getting over surgery was looking very attractive. My manager suggested I take a week off with Easter so that I have a bit of a break and I don't use up too much of my annual leave. So that was really thoughtful of her.
The latest news of Andrew's shoulder is his physio was concerned about one particular movement that Andrew still couldn't do. He was worried that the bones were causing the problem rather than a muscular thing. The phsyio talked to Andrew's surgeon, who then instructed X -Rays be taken and said Andrew needed to see him in the next 2 weeks. There has been some talk that Andrew may need surgery to adjust the pins. Andrew isn't keen on more surgery, but I am encouraging him to just wait to see what the surgeon says.
Wednesday, 20 February 2008
Needed jeans already!!!
I had been holding off buying jeans until my open wound was all healed and the swelling had gone down. But with the cooler weather we have been having I couldn't wait any longer!! It was hard finding jeans that fit well all over, as quite often with pants, I find to get a waist that fits well, the leg is too small. Boy it will be good to have the skin taken from my legs!!!
Anyway, I managed to find a pair that weren't too expensive, and I am quite happy with them. I also gained a few nice comments about my butt in them too!!!! (Always like to hear that!!)
Well I am still having trouble with an open wound that is referred to now as my "hole". The GP took a swab that came back all clear, so that is good, no bacteria. But he decided that for it to heal properly from the inside out, it needed to be filled with packing gauze!!! He told me it could take up to 4 weeks to heal properly. I am in week 3 now and I am fed up!! I have another appointment to see him next week. The cavity has changed somewhat. It has had some improvement but the hole is quite deep and I am still able to fill it with quite a length of the ribbon gauze. I can't contain the ooze in the waterproof dressing that I put over the top of it. I get a terrible rash from the dressing, but the pharmacist helped out with that one and suggested a skin prep wipe that I put on my skin which then acts as a barrier, so my poor skin doesn't get ripped off every time I have to change the dressing. My skin even started bleeding for a while. The rash is much improved now though.
I still get very frustrated with the amount of swelling I get at the end of the day. It's not so bad if I am just going to bed, but when I am going out and want to wear closer fitting tops, I feel too self conscious about the swelling showing. Plus I still have some loose skin that needs to be taken care of with the next surgery.
I am trying to have some days of more intense exercise as I miss the jogging. I miss the feeling it gives me and how I feel after a good sweat!! But I can't do it too often as I still suffer for a few days afterwards of increased discomfort around the scar line and stiffness when bending or twisting. And of course it doesn't help the hole!!! It can get quite sore if I have been too active.
But, I am still surviving, and some days I feel quite good and hardly notice that I have had surgery.
Thanks to all of you who read my blog and give me such wonderful support and feedback. I suppose we all have to "hang in there" with some aspect of our lives!!!
Sunday, 3 February 2008
Still waiting for full recovery..............
Well this isn't the best photo of my face!! I don't seem to be able to smile and not talk when a photo is being taken!!
I have been really enjoying the range of skirts that suit me now!! I used to have to stick to the skirts that pretty much just hung down! I am dressed for a day of client visits in this picture!
Well, I am still waiting to have the feeling of full recovery! I still have a dressing on a spot that is still oozing. I know the saying is better out than in, but it is driving me nuts!! My poor skin around the spot is not coping with the tape that has to be continually put on and ripped off. I still have swelling in that area and I still get swelling on my tummy at the end of the day. The level of soreness changes each day depending on what I have been doing. I am desperate to increase the intensity of my exercise, but when I do a decent jog or have a really big hill walk, I suffer for it for a few days. I am so fed up with that!!
I have been in communication with my surgeon's nurse, but they just give a sympathetic response and tell me to keep in touch particularly if the open wound site looks red and inflamed or if I become unwell. I am going to see my GP tomorrow and get him to have a good look at the wound and see what suggestions or help he can give me. It is approaching 4 months since surgery and I just didn't expect to still be having these troubles at this stage. This is the stage I was hoping to be considering the next stage of surgery. But that is way, way off at this stage. I still have days where I am quite emotional and low about the whole experience. One night I just wanted to scream to have the skin put back on me. That was a night that I couldn't even get relief from the tight and sore feeling while laying in bed.
I am disappointed that it is taking so long to recover, especially as I worked so hard pre surgery to be at my absolute fittest. We just can't predict what our bodies will do, or how it will respond to stress and trauma.
But on the positive side, I still get such lovely encouragement from people and I am loving the shopping and being able to go into what ever shop I like!! I have to be grateful that I am able to work full time again and that I can do some form of exercise daily. I am also pleased that I have maintained my change in what I eat. I can confidently say that I have made lifestyle changes that will last my life time to ensure that I don't put weight back on again. Of course I have treats like dark chocolate, but I had always incorporated treats into my diet. Lifestyle change isn't about depriving yourself of everything you enjoy!!
So, here's hoping for advances in my recovery....................
Saturday, 12 January 2008
2008 - A new year, A new me???
I am now back at work Full Time with my full client group. It has been so busy and I have put in extra hours to keep up with the work load. This makes me tired and I just can't be bothered getting on the computer at home in the evenings. But I am managing work and I am enjoying that adrenalin rush of 51 things happening at once!!! Something I'm not happy with is that at then end of a working day, my tummy swells up like a beach ball. One night Andrew commented I looked pregnant!!! (He did get away with that one as I thought the same!) Then by the next morning the swelling has all gone again. When I am in the office, I try not to be sitting at the computer for long periods and get up for a wander around. I still worry a bit when visiting clients that I have a seat that doesn't cause me discomfort. I still can't manage my couch unless I have heaps of pillows behind me. But all in all, it is good to be back at work and feeling like life is getting back to normal.
Scar line update:
It is almost 3 months since my surgery. I still have the feeling of tightness around my hips and across my front. I am not happy that I still have one little spot that I need a dressing on. I still have a bit of discharge from that area. That area still has swelling also, giving me a bit of a funny shape. I get an aching back when I have overdone it a bit but I am using anti-inflammatory cream which is helping. My movement is getting better. I can bend down easier and twist around easier, but it still gives me a bit of a pulling feeling. This past week though I feel like I haven't had any improvement in how I generally feel. It is hard to know if I am overdoing it, or something else is going on.
Exercise update:
I am exercising every day for around 30 - 40 minutes. I started jogging again and slowly built it up to 30 minute jog one day. But I then suffered for a couple of days for doing that much activity . So I have stuck to shorter bursts of jogging. But this past week when I have jogged, I have had too much discomfort for a few days, so I have decided to stick to walking again for a bit longer. I find the hills to walk so that I feel I have challenged myself.
Next surgery:
I see the surgeon again at the end of March. We will have more discussion then about my next surgery. I don't want to have it until I feel no ill affects from this first one. I just couldn't cope with more stress on my body. I have days of feeling very discouraged by how long it is taking to recover and start to doubt if I will ever feel ok. I couldn't start another recovery process before fully recovering this time.
Shopping update:
I am building up a new wardrobe. But pants I bought a month ago are too big now due to the swelling going down. So I have learnt how to put tucks in my pants!! It is hard to find clothes that suit my odd shape. (I feel it is odd, Andrew tells me it isn't!!). Some pants don't suit if the leg isn't wide enough. I have a small waist, but my legs still have the skin hanging off! I have learnt to look for low or mid rise pants with wide leg fit!!! It is a whole new experience being able to go into any of the clothes shops! I don't feel out of place anymore, like I did when I went shopping with friends or my sister.
I still try to stay positive about progress, it can't get any worse can it!!!!